Thank you for visiting Sophia's Hope, and joining the fight to cure EB. I am Sophia's mom, Katie. Through this blog, I hope to share Sophia's story, raise awareness about EB and hopeful research, discuss caring for a child with complex medical needs, and navigate the loss of a child. This blog is for any parent of a child with complex needs, any parent who has lost their precious child, and any family and friends who just want to gain a better understanding of what their loved ones are going through and how to help. Most especially, this blog is for those who want to see an end to EB and all the suffering it causes.